As I've mentioned earlier, my son was diagnosed with Eosinophilic Esophagitis (EE), a rare (but increasingly diagnosed) disease which can cause people to be allergic to a wide variety of foods. Often, EE patients cannot eat any food or only a handful of foods. These patients, like my son, are kept nourished using special total nutrition formulas which usually need to be taken via a feeding tube. Fortunately, the disease is not fatal. However, it is chronic and can significantly impair quality of life. To learn more about it, view this video produced by the American Partnership for Eosinophilic Disorders. It is touching, and for my family it hits close to home.
This has been a trial for my family, and as things came to a boil I could no longer sustain regular posting here. I'm not sure what the future of this blog will be. For the few of you still reading this blog, let me tell you that I would not trade our trials for any of yours. I'm grateful to have a son that teaches me that you don't have to be "normal" to be happy. I try to keep a positive attitude, because I don't want my son growing up feeling like a victim. If we want him to be strong, we must show him how.
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